Private Event
5 Truths Doctors Haven’t Been Saying But You’ve Been Living: The Conversation Rare Disease Patients Have Always Deserved
Registration
About Event
“There are things in healthcare I’ve been living… but no one has ever said out loud.”
If that feeling resonates… this conversation is for you.
Rare Patient Voice (RPV) and CareCrowd are bringing together physician advocates Dr. Mary Nwoke and Dr. Samantha Jackson-Dilts, alongside RPV’s own Stacey Haines, for a live, candid conversation about the truths many rare disease patients have been living, but rarely hear acknowledged in healthcare.
Together, they’ll unpack what happens within the healthcare system and between visits, why it can feel so overwhelming, and what it could look like to have meaningful physician presence in those moments.