Volunteer Opportunity: Building a Future Together: A Hunter Syndrome Community Conference
The Center for Leadership is partnering with Project Alive to support the Hunter Syndrome Community Conference by volunteering at Kids Camp, a program designed to give parents and caregivers the opportunity to fully participate in conference sessions while their children engage in a safe, inclusive, and fun environment.
Project Alive is a national nonprofit serving the Hunter syndrome community. Hunter syndrome is a rare, progressive genetic disorder that primarily affects boys and requires lifelong care and support. This conference brings families together to access education, resources, and community.
Volunteers will be paired with one to two children as “buddies” and will help support activities such as arts and crafts, games, snack time, and group engagement under the guidance of Beyond Blindness — a nonprofit specializing in services for children with disabilities.
This is a meaningful opportunity to make a direct impact by creating a supportive, engaging experience for children and their families.
Volunteer Shift Options:
• Morning Shift: 8:00 AM – 12:00 PM
• Afternoon Shift: 12:30 PM – 5:00 PM
• Full Day: 8:00 AM – 5:00 PM
Volunteer Responsibilities:
• Support children in activities as a buddy
• Assist with snack time and transitions between activities
• Help create an inclusive and welcoming environment
• Follow guidance from Beyond Blindness staff
Volunteers will not be responsible for toileting, diapering, or administering medication. Parents will remain onsite and available if needed.
Learn more about the host:
Project Alive is a national nonprofit organization dedicated to improving the lives of individuals and families affected by Hunter syndrome, a rare and progressive genetic disorder that primarily affects boys. The organization works to accelerate research, provide education and resources, and build a strong, connected community for families navigating the condition. Through family conferences, advocacy efforts, and support programming, Project Alive creates spaces where families can access information, share experiences, and receive meaningful support.
Beyond Blindness is a nonprofit organization based in Santa Ana, California, that provides early intervention, education, therapy, and family support services for children with visual impairments and other disabilities. Their mission is to empower children to reach their full potential by delivering individualized, inclusive programs that support development, independence, and community participation. Through specialized expertise and family-centered care, Beyond Blindness helps create accessible environments where children of all abilities can learn, engage, and thrive.
The Leadership Scholars Program is the Center's flagship student leadership and professional development program. Open to students of all majors, the program provides structured opportunities to connect with senior executives, develop practical leadership and career-ready skills, and serve the broader community. Scholars participate in executive speaker events, mentorship and shadowing experiences, leadership development workshops, site visits, and service initiatives, while student leaders on the Scholars Board help design and deliver programming. Through sustained engagement, participants can earn scholarships and graduate with the Leadership Scholar — Distinction, recognizing their commitment to leadership growth, service, and impact.
The Giles-O’Malley Center for Leadership is a leadership hub within California State University, Fullerton's College of Business and Economics, dedicated to developing principled, effective leaders who create impact across organizations and communities. The Center brings together students, faculty, executives, alumni, and community partners to connect leadership theory with real-world practice through research-informed education, experiential learning, and industry collaboration. Through its student programs, executive education initiatives, community partnerships, and media platforms, the Center serves as a leadership voice for Orange County and is building toward a long-term vision of becoming a regional and national destination for leadership development.