The SNPPET Innovation Exchange

​Join our Quarterly SNPPET Innovation Exchange Webinar on January 20th at 5:00 PM CET / 11:00 AM EST. Connect with genetic counseling professionals and gain insights from leading experts. Featuring:

1. ​Tamara Hussong Milagre on "EVITA, a patient association for hereditary cancer syndrome & the EVITA Platform". Tamara is a recognized leader in hereditary cancer advocacy, founding the EVITA – Hereditary Cancer association in 2011. She is a member of the ePAG Council at the European Reference Network GENTURIS, focusing on Genetic Tumor Risk Syndromes. She completed the Master Class at the European School of Oncology and became a Patient Expert through the EUPATI course, highlighting her understanding of the vital role patients play in drug research. In 2019, she graduated from the EURORDIS Leadership School in Healthcare and Research. In recognition of her outstanding contributions, she received the Medal of Scientific Merit from the Portuguese Minister of Science in November 2020.

2. ​Sarah Wynn, Ph.D on the "Review of results of a large survey from 2000 people affected by rare chromosome and gene disorders." Sarah has a PhD in genetics from Imperial College London followed by many years of research in London and Hong Kong. She also has an MSc in Genetic Counselling. After a genetic condition was diagnosed in her family, she moved into the world of patient support. She is now the CEO of Unique (www.rarechromo.org), an organisation providing support, information and a voice for all those affected by rare chromosome and gene disorders. She provides the patient voice on many committees including NHS Genomics Clinical Reference Group, Joint Committee on Genomics in Medicine, and is a member of the scientific advisory board for the NIHR Manchester BRC, Manchester Rare Conditions Centre, DECIPHER and Rare Disease Hong Kong. She is also a Trustee for RareMinds and the Adelphi Genetics Forum. Register now to secure your spot and network with peers.