Join us for A Rare Affair in the Starlight Room at the Beacon Grand Hotel.
Hosted by Ultragenyx, all proceeds benefit The Neuromuscular Disease Foundation.

A Rare Affair

 in the Starlite Room at the  Beacon Grand Hotel.

This exclusive event has become a cherished tradition, marking the start of the J.P. Morgan Health Conference. Enjoy premier wines and hors d’oeuvres, graciously provided by our event sponsor, Ultragenyx.

All proceeds benefit the The Neuromuscular Disease Foundation. Learn more at 

Admit One: A Rare Affair

Includes 8-set table, logo and 1:1 meeting with Emil Kakkis

Platinum Sponsor

Includes 8-set table and logo on invites and tables

Gold Sponsor

Includes 8 seat table and logo on invites